hi pris / interesting to follow the links of your web siteSymptoms:Although its name trivializes the illness as little more than mere tiredness, chronic fatigue and immune dysfunction syndrome (CFIDS), also known as chronic fatigue syndrome (CFS), brings with it a constellation of debilitating symptoms.CFIDS is characterized by incapacitating fatigue (experienced as profound exhaustion and extremely poor stamina) and problems with concentration and short-term memory. It is also accompanied by flu-like symptoms such as pain in the joints and muscles, unrefreshing sleep, tender lymph nodes, sore throat and headache. A distinctive characteristic of the illness is post-exertional malaise, a worsening of symptoms following physical or mental exertion occurring within 12-48 hours of the exertion and requiring an extended recovery period.The symptoms of CFIDS are highly variable and fluctuate in severity, complicating treatment and the ill person’s ability to cope with the illness. Most symptoms are invisible, which makes it difficult for others to understand the vast array of debilitating symptoms with which people with the illness must contend.Other Common Symptoms Additional symptoms are frequently reported by people with CFIDS (PWCs) such as word-finding difficulties, inability to comprehend/retain what is read, inability to calculate numbers and impairment of speech and/or reasoning. PWCs may also have visual disturbances (blurring, sensitivity to light, eye pain, need for frequent prescription changes); psychological problems (depression, irritability, anxiety, panic attacks, personality changes, mood swings); chills and night sweats; shortness of breath; dizziness and balance problems; sensitivity to heat and/or cold; alcohol intolerance; irregular heartbeat; irritable bowel (abdominal pain, diarrhea, constipation, intestinal gas); low-grade fever or low body temperature; numbness, tingling and/or burning sensations in the face or extremities; dryness of the mouth and eyes (sicca syndrome); gynecological problems including PMS and endometriosis; chest pains; rashes; ringing in the ears (tinnitus); allergies and sensitivities to noise/sound, odors, chemicals and medications; weight changes without changes in diet; light-headedness; mental fogginess; fainting; muscle twitching; and seizures. all this is me / almost every last one / sorry to spam you like this / but no one understands / what it's like~jennx
jennxyou have these symptoms, too? have you seen a good CFIDS doc?
it was only 2 years ago that i was diagnosted with fibromyalgiai've been tired for yearsi've tried diet / anti depressantslots of poti think exercise is the bestbut some days nothing worksyes i've been to the doci've lived with pain for 23 yearsnowmore & more the symptoms multiplyi wish i could wake up just one morning of my life & feel restedlately the lack of circulation tomy feet and hands is getting worseamong other things //// my mantra:keep moving through it / or die / lol~fx
It's a rough illness. I don't think we ever get adapted to pain, dizziness, etc. 'One day at a time' is my mantra. I'm wishing the best for you.
Reading through these symptoms makes me wonder if I have this, besides ankylosing spondylitis. Hmmmmmmm.......
Hi Michael,Since we both started with ankylosing spondylitis, an illness that affects the immune system, it's worth looking into. When the symptoms are as more weighed in on the cogniive end, it's usually diagnosed primarily as CFIDS, the pain, more as FIBRO. There are sites that show the trigger points for FIBRO. The first time a doctor checked me for that I thought I'd go off the chair (I have both illnesses but the CFIDS is primary for me). Sometimes a visitor will hug me hello and dig fingers directly into my back where the points are and...gads, do i scream or say, dear god, let this hug end soon:-) Now a flat palmed hug I love!!! (That's for all future huggers who might be reading this lol)
interesting my first diagnosis was "possible ank spondy"for almost 20 years "that's what ihad" i prayed my back didn't fusekeep movingnow / / i don't know / i guess i haveevery thing & nothingi always thot it was because theydidn't know what else to do with mewhat else to call itmost lee i've been told it's in my headnow i don't share the pain unless i'mcompletely not functioning / how does one describe phantom painsthunder bolts & lighteningthe hard thing is people assumei'm lazy because it takes me 12 hours+ of sleep to almost feel like i've slept 8 hours / / any ways / yes / one day @ a timei know that one welltake care pris~jennx
YOU take care!!
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