I'm going to participate in a research study on one aspect of ME/CFS by Dr. Nancy Klimas at the U of Miami Medical Center. I just filled in the paperwork they'll use to decide whether to accept me or not. This study involves 4 trips to Miami over a two year period, a thorough evaluation first visit (physical and cognitive), wearing a bracelet for two weeks after each visit to measure activity level and keeping a short online journal, provided by them online, of how I feel each day. This test is for genotype research that they're doing but they save your blood and when they gear up for a study on the retrovirus, my blood, with my permission will be used. They pay 20 dollars traveling expenses so gas will be paid for, which is nice.
Traveling is difficult for me, even though this is tops an hour and a half down there and my husband will drive while I stretch out in the back seat, but I want to do this since Dr. Klimas does outstanding research. It also will give me a feel of what they do down there since she does treat individual patients, too, but with a very long wait list. Just to be able to see her for a consult off in the future would be really helpful.
Dr Robert Keller, the immunologist who treated me for 10 years down in Hollywood, FL, before his untimely death this year, was friends with Dr Klimas and her fellow researchers, so that already validates my diagnosis for them.
Now to wait...