I've not been able to post much recently. The fatigue and sore throat from this cold linger and the fatigue has been excessive. It's been hard to come back from this one.
In addition to that problem, the immunologist who has been treated my CFIDS for around 8 years now at a center an hour south of me is making drastic changes in his practice. I received a letter about that last week. He will be cutting down to a one man practice and the center as such will exist no longer. Before, there was a Physicians Assistant, a second doctor, nutritionist, Psychologist. Along with this change comes a financial one. As of next year, he will no longer be available for after hour calls (something I've never used ,anyway), but, more importantly, we will have to sign a contract agreeing to pay for any tests our insurance will not pay for and pay for any overtime on our visits. We won't be seen for another visit until this bill is paid in full.
A gifted immunologist, he does quite a few tests he's developed himself. I won't know until my routine appointment tomorrow if those haven't been covered or exactly what my financial responsibilities will be. He is also requiring all of us who stay with him to have a general internist. I've had a gyn and other doctors as needed for specialized problems, but in my search for an internist, despite the changes in seeing CFIDS finally as a legitimate disease, doctors still don't know what it is and , honestly, don't want those of us who have it in their practice. I have one lead left right now after not having messages returned, being put on hold until after 15 minutes I finally hung up at the doctors' offices whose names were given to me to try by my gyn, who is local.
A number of doctors, I'm discovering are going into concierge medicine. You pay thousands up front to be in their practice, though your insurance, or you, still pay for all visits. Two doctors I've called have gone in that direction.
My immunologist has chosen for philosphical/ethical reasons not to go concierge, but he says he can't make it financially anymore so we must share the burdon this way.
And meantime, our government officials have the best medical coverage in the nation, our insurance premiums go up and pay less...where's the fairness in this picture.
This has taken all of my energy to type. Right now all of this is piling up emotionally, but I'm taking it step by step and trying to sort things out as I can.