Tuesday, July 08, 2008

New CFIDS blog and forum

CFIDS stands for Chronic Fatigue Immune Dysfunction Syndrome. Doctors who treat this illness and patients who have this illness (myself included) have long objected to the demeaning chronic fatigue part of the name of this illness which affects us neurologically in profound ways. Attempts are actively underway to change to a more suitable name. I realize that most of you who visit my blog don't have this illness and may not even know anyone with it, but if so, a new blog and forum have opened up with excellent information on treatment, supplements and established protocols. The forum also provides a place to post questions.

James Landerson contacted me about both of these and encourages those who are interested to visit! Thank you, James.

CFIDS blog


Both of the above are also in my links list to the right.



Middle Ditch said...
This comment has been removed by a blog administrator.
Pris said...

I deleted your comment in error, trying to fix something on the site. Thanks for learning more about the illness. It helps us all!


Scot said...

thanks for this post, Pris.
Hey I posted a poem inspired by your woodstock post--sort of--hope all is as good as it can be.

Pris said...

Hi Scot
What a neat poem. I just read and commented. And thanks.

Pris said...
This comment has been removed by the author.
Anonymous said...

Will be checking this out. Thanks for posting Pris and have a good week-end.

chella said...

so glad you posted these sites. hang in & keep writing. miss talking to you on occasions. do u have skype? love, Chella

Pris said...

Ellen and Chella, thanks for visiting! Chella, sorry, I don'thave skype. I don't use chats much at all..just for emergency contact. Too dizzying.

Rachel Mallino said...

Hi Pris,

I actually do know someone who has this illness. It was so frustrating for her at first, because doctors just didn't know what was wrong with her. So she stayed home, took a leave from work, and basically stayed in bed all day. She eventually came around again, but knows that it could cycle again at any time.

Have you always been open on your blog about this? The reason I ask is because I recently "outed" myself on my blog about my PTSD diagnosis (which I received approximately 4 years ago, although I've had PTSD since about 8 years old). Anyway, it was a strange and frightening feeling for me.

I wish you well on your journey with this.

Pris said...

Yes, I've always been open about this. I posted back to you already. I'm wishing you well, too.